Heartbroken for my son

I am absolutely heartbroken for my son. We have been on this journey, trying to figure out what was going on with him since 6. He has had limping, leg pain, posturing when walking, some hand cramps. We first went to peditrican. Then orthopedist several times. Cleared by rheumatologist after a lot of testing…and it was until I recently demanded we get into neuro that we finally maybe have some answers. Initially they are thinking dopa responsive dystonia, but he isn’t responding levodopa the way they had hoped. So it may something even more rare. Like I lesser known dystonia. Ordered genetic testing.

My son LOVES sports. Wants to play all of them. However, all of his 4th grade friends are now in competitive leagues you have to try out for and my son has. He has been cut bc he can’t run like others. 😢😢

We are in physical therapy, but have been told dystonia is hard. Life long, hard. 😢 are there any sports that are dystonia friendly?

He is so so so smart but he has said “he doesn’t want to be the kid that is smart”. All his friends are starting to phase him out bc they only hang out with teammates. Naturally this makes sense, bc it is easy on the parents and the kids to hang out with people you see the most.

Anyway. Any suggestions on how to make his life easier is appreciated.